THE CONTROVERSY OVER AUTISM’S MOST COMMON THERAPY- APPLIED BEHAVIOUR ANALYSIS THERAPY

CONTENT TRIGGER WARNING: This is only based on some of the people in the autistic community about this delicate topic yet I have done my own research and would like to share my own personal opinion on this. CONTENT TRIGGER WARNING AND DISCLAIMER I am no medical doctor, I am just your normal Jo Blogs, so if you see anything out of the ordinary, do seek professional help for yourself or your loved one or seek a second opinion for yourself or your loved one as I don’t condone self-harm. Without a doubt, there has been cause of concern and cause to question about Applied Behaviour Analysis therapy largely by some parents with autistic children along with the autistic advocates, largely because of a fiercely articulate and vocal community of adults with autism. These advocates, many of them childhood recipients of Applied Behaviour Analysis, say that the therapy is harmful. They contend that Applied Behaviour Analysis is based on a cruel premise — of trying to make people with autism ‘normal,’ a goal articulated in the 1960s by psychologist Ole Ivar Lovaas, who developed ABA for autism. What they advocate for, instead, is acceptance of neurodiversity — the idea that people with autism or, say, attention deficit hyperactivity disorder or Tourette syndrome, should be respected as naturally different rather than abnormal and needing to be fixed.     Sure, it may be working for some children with Autism and not for others. I will have to say myself that what you do decide for your child is up to you. This into what I am sharing is just based on some of the research I’ve done as well as talking to some autistics on the autistic community to share what and how they feel about it all. “Applied Behavior Analysis has a predatory approach to parents,” says Ari Ne’eman, president of the Autistic Self Advocacy Network and a prominent leader in the neurodiversity movement. The message is that “if you don’t work with an ABA provider, your child has no hope.” What’s more, the therapy has a corner on the market, says Ne’eman. Most states cover autism therapy, including, often, Applied Behavior Analysis — perhaps because of its long history. But in California, for example, parents who want to pursue something else must fund it themselves. Whether Applied Behavior Analysis is helpful or harmful has become a highly contentious topic — such a flashpoint that few people who aren’t already advocates are willing to speak about it publicly. Many who were asked to be interviewed for the article of SpectrumNews declined, saying they anticipate negative feedback no matter which side they are on. One woman who blogs with her daughter who has autism says she had to shut down comments on a post that was critical of their experience with an intensive ABA program because the volume of comments — many from Applied Behavior Analysis therapists defending the therapy — was so high. Shannon Des Roches Rosa, the co-founder of the influential advocacy group Thinking Person’s Guide to Autism, says that when she posts about Applied Behavior Analysis on the group’s Facebook page, she must set aside days to moderate comments.     Strong opinions on both sides of the issue abound. Meanwhile, parents like Quinones-Fontanez are caught in the middle. There’s no doubt that everyone wants what is right for these children. But what is that? A new view on Applied Behaviour Analysis: Before the year of the 1960s, when autism was still poorly understood, some children with the condition were treated with traditional talk therapy. Those who had severe symptoms or also had an intellectual disability were mostly relegated to institutions and a grim future. Against this backdrop, Applied Behavior Analysis at first seemed miraculous. Early on, Lovaas also relied on a psycho-therapeutic approach, but quickly saw its futility and abandoned it. It wasn’t until Lovaas became a student of Sidney Bijou, a behaviourist at the University of Washington in Seattle — who had himself been a student of the legendary experimental psychologist B.F. Skinner — that things began to click.     Skinner had used behavioural methodologies to, for instance, train rats to push a bar that prompted the release of food pellets. Until they mastered that goal, any step they made toward it was rewarded with a pellet. The animals repeated the exercise until they got it right. Bijou contemplated using similar strategies in people, judging that verbal rewards — saying “good job,” for instance — would serve as adequate motivation. But it was Lovaas who would put this idea into practice. In 1970, Lovaas launched the Young Autism Project at the University of California, Los Angeles, with the aim of applying behaviourist methods to children with autism. The project established the methods and goals that grew into Applied Behavior Analysis Part of the agenda was to make the child as “normal” as possible, by teaching behaviours such as hugging and looking someone in the eye for a sustained period of time — both of which children with autism tend to avoid, making them visibly different. Lovaas’ other focus was on behaviours that are overtly autism-like. His approach discouraged — often harshly — stimming, a set of repetitive behaviours such as hand-flapping that children with autism use to dispel energy and anxiety. The therapists following Lovaas’ program slapped, shouted at or even gave an electrical shock to a child to dissuade one of these behaviours. The children had to repeat the drills day after day, hour after hour. Yet, as we know that it’s important for us autistics to stim as this is an outlet to reduce stress and anxiety. I have shared more about stimming and its importance etc where you can watch here: In these early years of the 1970s, videos of these early exercises show therapists holding pieces of food to prompt children to look at them, and then rewarding the children with the morsels of food. Despite its regimented nature, the therapy

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To all autistic people out there, remember that you are valued and loved just the way you are. Your unique perspective and skills offer a richness to the world around us. It is important to embrace who you are and take pride in your strengths, no matter how different they may be from others. We understand that navigating the world can be challenging, but know that you are not alone. There is a supportive community out there and resources available to help you thrive. Always remember that your worth is not defined by your diagnosis or other people's perceptions. You are a valuable and cherished member of society, and your efforts to better yourself and the world around you make a huge difference. So keep shining, keep persevering, and keep being you!
- Kerrin Maclean. -